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SB2 Patient Q&A

1. What is your background as a patient? a. My background as a patient started when I was 11 it was a long period of time dealing with symptoms and finally being diagnosed with Ulcerative Colitis in June of 2000. I went through many different treatments and trials...

How I Advocated for Myself: My Port Experience

By: Chloe Moody One of the most important lessons I’ve learned as a life-long chronic illness sufferer is self advocacy. If you don’t let it be known what your body needs to feel better and improve your quality life, how will it get done? I am a firm believer that it...

Quarantined As A Registered Nurse

By: Sarah Vasilakos As a nurse living at home with her parents, quarantine can be a bit tricky. Being an essential employee in a hospital, there is no option for me to work from home. Since I can’t socially distance from my coworkers or patients, us healthcare workers...
How I Found the Ostomy Support I Needed

How I Found the Ostomy Support I Needed

By: Chloe Moody What would you do if your child was born with a rare, life threatening disease and given a colostomy bag just days after birth? Probably the first thing my parents did: look for support. My parents joined the UOAA in 2001, two years after my birth when...

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I Feel Like an Imposter In The World of Disabilities

I Feel Like an Imposter In The World of Disabilities

By: Karin Camposagrado Ever wondered what it's like to have a disability? I think it's a different experience for everyone. I saw a variation of a quote by Angel Chernoff the other day that really sums up my experience of living with a disability, it said "If the...

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My Faith Helped Me Fight Cancer

My Faith Helped Me Fight Cancer

I remember when I was in bed recovering from endometrial cancer, metastatic to colon nearly two years interrupted, between 2013 and 2015. I was dealing with the symptoms of cancer, an ostomy, a failed surgery, many side effects from medications, intense general pain...

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Cancer Doesn’t Discriminate

Cancer Doesn’t Discriminate

By: Keyla Caba Cancer.. It doesn’t discriminate; it is a disease that can and does affect us regardless of social status, race, gender, age, religion and sexuality. When I was told shortly after my 30th birthday that I would need a hysterectomy I felt the wind being...

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How My Support Dog Has Given Me Purpose

How My Support Dog Has Given Me Purpose

By: Sierra Cabezas She gives me a sense of purpose even when I feel I have nothing to give or do.     Ever since I became disabled and most of days became home bound, I discovered a new appreciation for pets. What I didn’t know at the time was just how vital...

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The Power of The Ostomy Community

The Power of The Ostomy Community

By: Rena Münster For me, part of adjusting to life with an ostomy was getting involved in the ostomy community. I remember being overwhelmed with emotion walking into my first UOAA support group. It was refreshing to be in a room with 25 other people who all had an...

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I Celebrate My Life With You Even In The Hard Times

I Celebrate My Life With You Even In The Hard Times

By: Bethany Lowe Although “in sickness and in health” is part of the vows you state when you get married, it’s sometimes easier said than done. My husband, Louis, and I have dealt with this since before we were engaged or married because he met me right after I was...

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How Sepsis Almost Killed Me

How Sepsis Almost Killed Me

By: Sarah Vasilakos This January marks 12 years since my own personal experience with developing and surviving sepsis. Anytime we have an infection, chemicals are released into the bloodstream leading to an inflammatory response to occur. This is our body’s defense...

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