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We support patients who are experiencing IBD, have Colorectal Cancer, or those who have and have had a stoma

No matter what stage you are in during your health journey, we are there to support. The Patient Coach Program is a unique ostomy peer-to-peer support network that offers guidance, emotional support and education as you prepare for surgery and adapt to your new life with an ostomy. 

Want to try SmartCare at home?

At 11 Health you will always have a family to welcome you. You will always be connected with someone who has an empathetic ear. 

Patient Coaches are paired with new or old ostomy patients based on similar medical experiences and lifestyle demographics so their coach can help support them in their new journey with an ostomy in the most compassionate way. 

Benefits

  • Peer-to-peer support in preparation for your surgery
  • Advice on living with a stoma from someone who has “gone through it before”
  • Direct access to your Patient Coach anytime you need them
  • Individual support with your device set-up and navigating the Alfred Platform
  • English and Spanish support is available

 

How it works 

  • First, download the Alfred SmartCare app
  • Representatives from 11 Health will contact you to match you with a coach
  • You will be contacted by your personalized Patient Coach to help you get prepared for your surgery
  • Your Patient Coach will help you to identify your goals and the best ways to achieve them
  • Your Patient Coach will continue to support post-recovery and into your new life with an ostomy

11 Health also offers post-surgical support with Alfred: OstomySolutions

Features:

  • Patients will receive the Alfred: SmartBag 2 system with wireless connection to the Alfred: SmartCare app which provides data on stoma activity, cumulative output, risk of leakage and changes in skin condition which are transmitted to the patient and clinical team
  • Access to the Clinical Dashboard, a complete patient monitoring platform for clinical teams
  • Patient access to hospital documentation & scheduling information
  • Access to educational modules and goal setting to ensure they are optimally prepared for life with an ostomy
  • A trained health coach who is, or has been, an ostomate to ensure that hospital protocols and evidence based preventative measures are followed

    Sierra Cabezas

    Hello, my name is Sierra! I live with an ileostomy because of Ulcerative Colitis. I enjoy arts and crafts, gardening, and I like to think of myself as a gamer aficionado. I’m also an avid camper! I became a Patient Coach because after 20 years of experience with...

    Bethany Lowe

    I’m Bethany, and I used to have an ostomy, but it was reversed! I had a temporary ostomy because of Crohn’s disease. A few things I love include my puppy, Wrigley, pure barre class, and almond milk lattes! I wanted to become a Patient Coach because I wanted to use my...

    Moniqua Demetrious

    Hi! I’m Moniqua! As an Ulcerative Colitis patient, I have lived with a temporary ostomy, and currently have a J-Pouch. Fashion is my outlet; I love collecting lapel pins! I’m not a fan of flying, but if it means traveling to a new place then count me in. I wanted to...

    Rena Münster

    My name is Rena, and Ulcerative Colitis is what led me to my permanent ileostomy. I am a cat lover and have two celebrity cats, Chip and Mama! I used to work as a graphic designer, but followed my passion and became a licensed acupuncturist. I love visiting...

    Megan Alloway

    Hi there! My name is Megan and I have Crohn’s disease as well as an ileostomy. I enjoy reading and live being outdoors! Birdwatching, walking, and fishing are some of my favorite outdoor activities. I also enjoy spending time with my family. I am a Patient Coach...

    Cristine Miller

    Hello! My name is Cristine, and I live with a J-Pouch. I have a J-Pouch because of a battle with Ulcerative Colitis. A few of my favorite activities include dancing, hiking, needlepoint, and swimming. I also really enjoy horseback riding! I am a Patient Coach to serve...

    Chloe Moody

    I’m Taylor, and I am living with an ileostomy due to Crohn’s disease. I am passionate about dance and gymnastics, and love being active! I never let me ostomy stop me. I wanted to become a Patient Coach because I never want anyone to think that they can’t do something...

    Hayley Brumfield

    Hi, my name is Hayley! I have both Crohn’s disease and an ileostomy. I absolutely love indoor plants! Right now, my collection is around 35 plants, but I am always looking to add more. I knew I had to be a Patient Coach because it’s an amazing program! Ostomy surgery...

    Danielle Gulden

    Hi, I’m Danielle! I have a permanent ileostomy from Ulcerative Colitis. Something about me? I love cheese! I also am an avid traveler and my favorite cities are New Orleans and Savannah, Georgia. I am a Patient Coach because my IBD/ostomy journey has been long and...

    Joe Teeters

    Hi, I'm Joe! I have Crohn's disease and an end ileostomy. My favorite thing? I love improvisational comedy! I also enjoy acting, juggling, watching movies, and reading. I am a Patient Coach because I want to help others by sharing my experience, knowledge, empathy,...

    Angela and Kaitlyn Kelly

    Hi! We are Angela and Kaitlyn Kelly, a mother-daughter Patient Coach duo! Kaitlyn is my daughter, and she has an ostomy as well as Crohn’s disease. I am Kaitlyn’s mother, caretaker, and advocate. In our free time, Kaitlyn enjoys art, drama, and dance! We wanted to...

    Carmen and Sophia Park

    We are Carmen and Sophia Park, a mother-daughter duo! I am Carmen, Sophia’s mother and caretaker. Sophia is my daughter and she is a Crohn’s-Colitis patient who used to have an ostomy, but is now living with a J-Pouch. I enjoy decorating, cooking, and crafting, while...

    Katie Vyn

    Hi, my name is Katie! I’m an ostomate and have an ileostomy from Ulcerative Colitis. Having an ostomy hasn’t stopped me, as I am passionate about Martial Arts and teaching children self-defense as well as capoeira! I am also a writer and enjoy writing poetry. I wanted...

    Cerimar Cardona

    Hello, my name is Cerimar and I have an ileostomy from Crohn’s disease. I enjoy sewing and making covers for my ostomy bag! I also love photography. I am a Patient Coach because I want to be there as a support system for everyone having surgery or currently living...

    Victoria Blum

     My name is Victoria and I have a condition known as FAP, which is how I got my ileostomy. A few of my favorite hobbies include reading, crocheting, and I also love looming! I knew that I wanted to be a Patient Coach because my goal is to help guide and support other...

    Luz Jimenez

    Hello! My name is Luz and I have an ostomy due to sarcoma. My favorite things are the three C’s – cats, cooking, and couponing! I am a Patient Coach because my goal in life is to help others survive and heal. After enduring my own personal journey, I am excited to use...

    Jearlean Taylor

     Hello, I’m Jearlean! I am a cancer survivor and have had my ostomies my entire life. I have a colostomy and urostomy. I am passionate about modeling and mentoring others, and I love spending time with family and friends! I am a Patient Coach because I want to make a...

    Christine Joyce

    Hello, I’m Christine! I once had an ostomy and colostomy colostomy due to diverticulosis, however both have been reversed. I love to be active through walking and practicing yoga, and I also enjoy reading and traveling. Being a Patient Coach has given me the wonderful...

    Ryan Stevens

    Hi, my name is Ryan and I have Crohn’s disease, which has resulted in an ileostomy. I enjoy writing, reading, and being active. You can find me swimming and even participating in triathlons, all with an ostomy! My goal as a Patient Coach is to help those who may feel...

    Charlotte Rensberger

    Hi there, I’m Charlotte! I have Crohn’s disease and an ileostomy. A few of my hobbies include refinishing furniture, crocheting, and I love baking! I also enjoy singing, and in my spare time I love to sit down and write. Why did I want to become a Patient Coach?...

    Alyssa Zeldenrust

    Hi, I’m Alyssa! I have Crohn’s disease and a permanent ileostomy. My ostomy journey has brought me to meet a lot of new friends, and I love having video chats with my ‘gutsy’ friends! I have an artistic side and love writing letters, drawing, and painting. Believe it...

    Noelle Schuyler

    Hi! I’m Noelle, and I have an ileostomy because I also have Crohn’s disease. I am a mom to two wild boys and used to be a monkey trainer at an organization that trains service animals for people living with paralysis! I am a Patient Coach because coaching is my...

    Karin Camposagrado

    My name is Karin, and I live with an ileostomy because of Ulcerative Colitis. Even though I have an ostomy, it doesn’t keep me from enjoying my favorite food – tacos! I’m a barre instructor, and in my spare time I enjoy practicing yoga, capoeira, and going hiking....

    find us on Ostomy 101

    Resources

    National Suicide Prevention Awareness Month

    September is National Suicide Prevention Awareness Month. It is a time to share education, ensure access to resources, raise awareness, and break the stigma. The life-changing event of receiving an ostomy is often met with grief and sadness. As a result of the bodies physical changes and new challenges, patients often become socially isolated and experience depression. Depression is a major risk factor for suicide.

    If you think you might have depression, you are not alone.

    An estimate of more than 17 million U.S. adults experienced at least one major depressive episode in 2017. One in every four patients with Inflammatory Bowel Disease experiences depression following surgery and nearly one in five IBD patients develop depression or anxiety within six years of their IBD diagnosis. 

    Read more stories on
    Club 11 Health

     

    SB2 Patient Q&A

    1. What is your background as a patient? a. My background as a patient started when I was 11 it was a long period of time dealing with symptoms and finally being diagnosed with Ulcerative Colitis in June of 2000. I went through many different treatments and trials before finding Remicade when I was 19. Remicade was a miracle to me. Once I started it I was in remission for 11 years. Summer of 2019 I had noticed I wasn’t feeling well and had signs of an Ulcerative Colitis flare but it felt worse...

    How I Advocated for Myself: My Port Experience

    By: Chloe Moody One of the most important lessons I’ve learned as a life-long chronic illness sufferer is self advocacy. If you don’t let it be known what your body needs to feel better and improve your quality life, how will it get done? I am a firm believer that it is absolutely okay to tell your doctor exactly what you need rather than letting them decide for you. This was the exact mindset I had when I made the decision to ask my GI doctor for a port. As someone with a short bowel, chronic...

    Quarantined As A Registered Nurse

    By: Sarah Vasilakos As a nurse living at home with her parents, quarantine can be a bit tricky. Being an essential employee in a hospital, there is no option for me to work from home. Since I can’t socially distance from my coworkers or patients, us healthcare workers have to get a bit creative when it comes to quarantining. I leave a towel out at home so I can throw my work clothes straight into the washer, and go upstairs to take a shower immediately. I give my parents a quick hi, and my dog...

    5 Tips to Help You Cope with Anxiety During Covid-19

    By: Taylor Carmack Having a chronic illness can cause anxiety for anyone, but adding in being stuck in the house due to a global pandemic can cause anyone to freak out. I know how it feels, because I’m someone with a chronic illness, an ostomy, anxiety and I’m suck in the house. I have some tips that I remind myself of everyday that might be useful if you’re feeling the same way I am. Let’s face it, these days are awful for control freaks like me. When I feel like everything is out of my...

    Prioritizing My needs as A Patient

    By: Karin Camposagrado Ever feel like you’re being pulled in every direction, and you’re about to snap like a rubber band that’s been sitting in the sun? I try to avoid feeling like that, but as a person with chronic illness, an ostomy, work, a social life, and a family, sometimes it’s a challenge. Prioritizing my needs as I juggle all the aspects of my life is a necessity. It’s not an option. It’s not selfish. It’s what needs to happen in order for all of those other aspects to run well. One...

    I Had the First Taste of Depression When I lost You

    By: Moniqua Demetrious “Depression lies. It tells you you’ve always felt this way, and you always will. But you haven’t, and you won’t.” There wasn’t an exact moment that depression entered my life. I think it just became a lot louder and harder to handle when life become tougher to face. I also believe I had programmed myself to mute it well since society frowns and looks down on it. The day I lost my father, 11 years ago I tasted the sourness of depression. It came to me in scattered moments...

    Working Long Shifts with an Ostomy

    By: Charlotte Rensberger In the nursing profession, long shifts are a given, they become a way of life. Most nursing jobs are 12-hour shifts. I am a Pediatric Nurse Practitioner, and my current schedule is a mix a 12- and 24-hour shifts. Now don’t get me wrong, there are some perks with this schedule, like not having to work 5 days a week, for one. But there are also some challenges, especially with Crohn’s Disease and an ostomy. Here are some that I have encountered and my tips for how to...

    5 Ways to Improve Hospital Stays

    By: Alyssa Zeldenrust Hospitals are terrible places for healing, but I’ve picked up a few tips for making the best of a certainly bad situation. After many years I’ve become more of an expert than I’d like through a lot of trial and error. Here are a few ideas to improve hospital stays: 1. Decorations Brightening up the atmosphere can be cheap, hilarious, and bring unexpected moments of laughter during frustrating days. Decorations can turn the ugly gray and beige walls colorful and remind you...

    I Have Mom Guilt Because of IBD

    Have you ever heard of the term “mom guilt”? It’s essentially the concept of feeling like you can’t be an effective mom because of other obligations or factors. Mom guilt is present in the lives of most moms in some way, shape, or form, and I am not immune. Many women with IBD struggle to conceive and carry babies, but I was lucky enough to be blessed with two children. However, before I was a mom, I was a nurse, and a wife, and I had Crohn’s Disease. There are numerous things to think about...

    How I Found the Ostomy Support I Needed

    By: Chloe Moody What would you do if your child was born with a rare, life threatening disease and given a colostomy bag just days after birth? Probably the first thing my parents did: look for support. My parents joined the UOAA in 2001, two years after my birth when it was looking like my ostomy would be permanent, and they started to consider the lifelong impact. Back then it was just the UOA, and my local chapter was huge. There were over 150 members, and we were greeted by a conference...

    Become A Patient Coach

    If you believe your experience as an ostomate can help other patients and you would like to join the 11 Health family of Patient Coaches, please get in touch by completing the form below.