SAVE THE DATE
Join us for this half-day virtual event!
Wednesday March 23rd at 3pm EST
It’s Michael's Birthday!
Day(s)
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Hour(s)
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Minute(s)
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Second(s)
January
Sex, intimacy and relationships
Neil Nandi, Lora Yeater & Dana Garber
December
Mythmas
Brent Reel and Dawnette Meredit
October
The October Sessions
Various speakers
March 23rd, 3:00 pm EST
Advocacy
“The power of advocacy”
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Matt Eagles
Head of Patient Engagement at Havas Lynx Group
A positivity activist a speaker , host , panellist and patient champion . I have lived with Parkinson’s for 45 years, I get patients , I connect people. I listen , engage and empower .
- Recipient of the British Neuroscience Association Award for Public Engagement of Neuroscience 2020
- First patient to chair a track at Eye for Pharma Europe in London 2018 .
- Finalist at National Diversity Awards for Positive Role Model ( Disability ) 2020
- Proud member of Twin , a global connective of innovators
Age 52
Diagnosed in 1975 with Parkinson’s
I’ve wing-walked , skydived , abseiled , I’ve been charged by an elephant in Botswana , I’ve appeared on ITV morning TV , BBC North West Tonight x 4 , Sky News , Radio Five Live x 5 appeared in The Times , The Independent , The Mirror , the Sun, the Daily Mail, The Express . I’ve spoken at Wired Health , The Financial Times . I was an accredited Football Photographer at the London 2012 Olympics
I’ve travelled extensively including Japan , USA , India, Nepal , Namibia , Zambia , Botswana , Bulgaria, Denmark , Norway , France , Germany , Belgium , Greece
I head up a global wellness campaign called Parkylife, the brighter side of Parkinson’s
www.parkylife.com
Gathering together the brightest slices of positivity from across the Parkyverse, Parkylife is chock-full of hacks, perks, inspiring people and funny stories.
Amber Tresca
Amber Tresca was diagnosed with ulcerative colitis at the age of 16. After 10 years of active disease, medical therapy failed and she underwent the 2-step j-pouch surgery (removal of the large intestine and creation of an internal pouch from the last part of the small intestine).
Amber founded the About IBD blog and podcast and co-founded IBDMoms with Brooke Abbott of The Crazy Creole Mommy Chronicles. She currently works as a speaker, facilitator, and advocate for people with IBD as well as a freelance writer and editor for medical websites and publications.
“Creating the new gold standard in health care”
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Bernhard Gilbey
11 Health CEO
Bern joined 11 Health in 2018, initially as Chief Commercial Officer. He has spent over 20 years in leadership positions, having previously been responsible for a global team for more than 17 years.
Since very sadly losing Michael at the end of May last year, Bern has had what he describes as the honor and privilege of being asked by the 11 Health board to take on Michael’s responsibilities as CEO.
Karen Solis
Head of Patient Services at 11 Health
Prior to becoming an 11 Health member, Karen was a sports psychologist at ITESO University in Mexico and was also working at INSTINTO as a Sports Psychology Consultant. Overall, I Karen has more than 10 years’ experience working with athletes from beginners to Olympics level, 4 years as Vice President of the Mexican Society of Sports Psychology and Physical Activity. Karen used to organize national conferences and academic projects and spent 4 years leading the educational sports area at the University by developing educative models for trainers and athletes. Karen has 11-year experience as a professor and created the 4th editions of Academic Journeys of Physical Activity World Day and the 3rd. editions of Summer Sports Clinics.
In 2013-2014, Karen became an e-scholar at Stanford Medicine X and started her blog with publications to help people in her country with the same condition as herself (Fibromyalgia). Karen also has a degree in Psychology and Master’s in Education and Knowledge Management by ITESO (Jesuit University in Guadalajara). Karen is currently Head of Patient Experience leading the psychology aspect of 11 Health understanding the psychosocial and educational needs on ostomy patients and developing adherence models for them and stakeholders by using the vision of Everyone Included Model to create new and effective solutions for final users.
March 23rd, 4:00 pm EST
Confidence
“Difference makers – Nothing can stop us”
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Dawnette Meredith
President/Founder. Ostomy 101 Inc. nonprofit.
The Ostomy 101 mobile app has been downloaded by ostomates in 30 countries searching for ostomy information & support.
President. Ostomy Support Group San Diego
President/Founder. Awesome Ostomy Ntl. A project whose mission is to give teddy bears with ostomies to children who undergo ostomy surgeries.
President of the Ostomy Support Group of North San Diego County
Co-Founder. Ostomy Support Tijuana Mexico
Coordinator. Free Ostomy Supply Closets Southern CA & Tijuana MX
Ostomy 101 Free Mobile App
IOS Link: https://apps.apple.com/us/app/ostomy-101/id1498631622?l=fr&ls=1
Android Link: https://play.google.com/store/apps/details?id=com.goodbarber.ostomy101
Debi Fox
Founder and Executive Director of Ostomy 2-1-1, Inc.
Debi Fox is known for her tireless work in the Ostomy community. Her award-winning articles strive to make a difference by bringing awareness, education and support. She serves as an Ostomy Peer Support Specialist and Volunteer to numerous clinics, hospitals, and organizations.
Danielle Gulden & Joe Teeters (Double Baggin'it)
Double Baggin’it
Danielle and Joe are IBD warriors, permanent ileostomates, comedians, speakers, advocates, and Two Best Friends without Buttholes! Danielle and Joe use their humor, wisdom, and stories to connect with and support other people living with ostomies and Inflammatory Bowel Disease!
They believe in the power of humor, advocacy, and awareness!
Stacy Dylan
Stacy Dylan, co-founder and president of the non-profit Connecting to Cure Crohn’s and Colitis (C to C), has worked for over 20 years in support of patients with chronic medical conditions. As an advocate for her son Lowell who was diagnosed with Crohn’s disease at the age of two, she created a community for families, caregivers, and individuals who face the challenges of coping with IBD. C to C provides a network of support for the IBD community while educating the public about the seriousness of these diseases. Through their annual events and donors, C to C has contributed to research that has made an impact on genetic and environmental discoveries of how IBD develops, and supports studies looking for new treatments and cures for IBD. Stacy received her BA in Art History from Hampshire College, and her MA in clinical psychology from Antioch University, and has practiced as a Marriage and Family Therapist.
Jeanine Gleba
As United Ostomy Associations of America’s (UOAA) Advocacy Manager since 2016, Jeanine Gleba raises awareness and advocates for those who have had or who will have ostomy or continent diversion surgery. Jeanine has her Masters degree in Education and over 16 years of experience of grassroots organizing including partnering groups to achieve a common goal and raising awareness for a cause. Before joining UOAA, Jeanine was the driving force behind the successful passage of a New Jersey law named for her daughter Grace, which benefits thousands of NJ children who have hearing loss. She is an award-winning advocate most recently receiving the 2020 Outstanding Alumni Award from Penn State Schuylkill Campus. She is also the author of the book Making Her Point Loud and Clear – The Story of a Warrior Mom on a Mission. Jeanine believes in giving back to her community and has served in numerous roles including as an elected official: Deputy Mayor/Councilwoman for six years. She currently serves on the Wound Ostomy and Continence Nurses Certification Board as a Public Member, Digestive Disease National Coalition Executive Board as Secretary and the NJ Audiology and Speech-Language Pathology Advisory Committee as a Public Member. Jeanine is passionate about inspiring others to self-advocate and make a positive change in their own lives, as well as in the lives of others.
March 23rd, 5:00 pm EST
Community
“A transformational story”
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Swapna Kakani
Swapna Kakani is a sought-after professional speaker in the area of overcoming personal adversity, and an accomplished advocate in the area of healthcare delivery and the patient experience. Her inspirational life story shows audiences her individual resilience and self-determination in the face of constant difficulties, as well as the impact her healthcare advocacy has across disciplines. Swapna was diagnosed with Short Bowel Syndrome, at birth due to intestinal atresia and for 28 years and counting has lived with home parenteral nutrition and for her first 20 years has lived with enteral nutrition.
In 2014, she had a small intestine organ transplant, and now lives with a permanent ileostomy. Swapna through her platform, Swapna Speaks, has given several presentations across the world to various healthcare companies and associations, hospitals, and non-profit events, including the Stanford Medicine X e-patient, the Cleveland Clinic/HIMSS Patient Experience Summit, and a TEDx talk in 2017. Swapna, does healthcare advocacy work for the Short Bowel Syndrome/Intestinal Failure/HPEN/Intestine Transplant and broader rare disease community. Shortly after her transplant, Swapna started the Intestinal and Multivisceral Transplant Support Group. She is a 2021-2023 board member for the Association for Vascular Access (AVA). You can follow Swapna on Facebook, Twitter, and Instagram @SwapnaSpeaks. Or email Swapna at info@swapnakakani.com.
“Improving the Patient Experience”
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Denise Silber
Denise Silber is a global, digital health pioneer, communicator and thought leader, and top ten social media influencer, on a mission to improve the quality of care for patients and healthcare professionals. She is the CEO of Basil Strategies digital health communications agency and the co-founder of VRforHealth, « tech for good » web platform and consultancy creating collaborative initiatives to facilitate the progress of Therapeutic Virtual Reality. A New Yorker in Paris, Denise Silber has lived and worked on three continents and authored multiple healthcare publications in English and French.
In 2011, an important year, Denise was awarded France’s highest civilian honor, the Legion of Honor for her contribution to eHealth in the US and Europe, she launched the Doctors 2.0 & You patient-included conferences with Stanford Medicine X as a partner, and she met Michael Seres in Palo Alto at the first Medicine X. In 2018, Denise Silber was named to the #InspiringFifty women in tech in France. A Harvard MBA, Denise is an active alumna, hosting podcasts for Harvard Alumni Entrepreneurs and as vice-president of the Harvard Club of France.
Julie Rish, PhD
Clinical Psychologist and Associate Chief of Patient Experience at the Cleveland Clinic.
Julie Rish, PhD is a Clinical Psychologist and Associate Chief of Patient Experience at the Cleveland Clinic. She is also the Director of Communication Skills Training and an Assistant Professor of Medicine at the Cleveland Clinic Lerner College of Medicine of Case Western Reserve University. Dr. Rish earned her doctorate degree from Loma Linda University and completed her pre- and post-doctoral training at Henry Ford Health Sciences Center and the Cleveland Clinic. Her clinical and research interests include healthcare communication, patient experience, behavior change, and human centered design. She is a published author and manuscript reviewer for leading journals in obesity.
Dr. Rish’s focus has been on applying human centered design to improve patient experience, and partnering with patients to transform healthcare. She is the Director of the Insights Studio, Cleveland Clinic’s integrated human-centered design capabilities. She is actively engaged in identifying best practices for patient experience, the evaluation of this work and development of innovative strategies to improve healthcare. Dr. Rish is passionate about improving experience for patients and caregivers, speaks nationally on this topic and was the recipient of the 2016 Press Ganey Success Story ® award, finalist for the 2018 Sherman Award, and serves on the EngageingPatients.org Advisory Board.
105 words:
Julie Rish, PhD is a Clinical Psychologist and Associate Chief of Patient Experience at the Cleveland Clinic. She is the Director of Communication Skills Training and an Assistant Professor of Medicine at the Cleveland Clinic Lerner College of Medicine of Case Western Reserve University. Dr. Rish’s work focuses on applying human centered design to improve patient experience and co-designing partnering with patients to transform healthcare. She is passionate about improving experience for patients and caregivers, speaks nationally on this topic, and was the recipient of the 2016 Press Ganey Success Story® award, finalist for the 2018 Sherman Award, and serves on the EngageingPatients.org Advisory Board.
March 23rd, 6:00 pm EST
Change
“Technology & Empathy to transform Patient Care”
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Dr. David Ziring, MD
David Ziring, MD, has dedicated his life to helping children with inflammatory bowel disease (IBD). He received his medical degree from the Chicago Medical School while earning his master’s degree in clinical immunology. Dr. Ziring went on to receive residency training in pediatrics at Children’s Hospital Orange County, then pursued subspecialty training in Pediatric Gastroenterology at UCLA David Geffen School of Medicine with Marvin Ament, MD, and associated faculty.
At UCLA, Dr. Ziring concentrated his research efforts on the regulation of the immune system in IBD with research mentor, Jonathan Braun, MD. Dr. Ziring was instrumental in describing the contribution of the gene CNR2 to IBD pathogenesis, working with collaborators at Cedars-Sinai. He has since migrated research interests from working in the laboratory with animal models to studies involving patients with IBD. This work resulted in the award of a Broad Medical Research Program grant to study the immunomodulatory effects of large doses of vitamin D in children with Crohn’s disease. Besides his research and direct patient care, Dr. Ziring works closely with the IBD community.
He serves as medical director of the Crohn’s & Colitis Foundation of America’s national Team Challenge half marathons, with events in Napa, San Antonio, Miami and Hawaii that have raised more than $30 million. He has been a volunteer physician for the past eight years with the CCFA’s summer program Camp Oasis, caring for more than 120 children with IBD each summer. Dr. Ziring serves as the primary investigator and UCLA’s representative for the CCFA’s national pediatric research network PROKIIDS and is a member of the IBD Committee for the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition. He has spoken at regional academic centers on topics from skeletal health in children with IBD to the transition of care of teens with IBD.
Brent Reel, BSN RN CWOCN CWS
11 Health Nurse
“My name is Brent Reel and I live in Los Angeles, California. My primary role is as a Wound Ostomy Continence Nurse where I work with newborns up to young adult populations. I love being able to connect with patients and their families as they navigate through life with a new ostomy and helping them overcome physical and emotional barriers to this new change. In addition to the work with patients and families, I enjoy serving on internal committees with a focus on developing new ideas and technology to enhance the patient experience along the healthcare continuum. This journey is naturally what drew me in to 11Health and their mission. In my spare time, I enjoy taking my dog to the beach, hiking, volunteering, accidentally destroying baking recipes by adding too much flour, and appreciating a good Netflix docuseries binge.”
Dr. Robert Fearn, MD
Dr. Fearn has over 15 years’ experience as a physician and a gastroenterologist in the English National Health Service, He has advanced training in intestinal failure, ostomy care, and inflammatory bowel disease.
A graduate of the University of Leeds School of Medicine, Dr. Fearn undertook his postgraduate gastroenterology and endoscopy training in London and Cambridge, England. He underwent advanced fellowship training in nutrition, intestinal failure, and intestinal transplant at St Mark’s and Addenbrooke’s Hospitals which involved adolescent and transitional care.
A strong advocate for innovation and the use of technology in healthcare Dr Fearn became Medical Director of 11 Health and technology in 2016, a company developing smart products and patient-centered care models for ostomates.
“How the Health Care System is changing?”
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Dr. Mona Siddiqui, MD, MPH, MSE
Senior Vice President for Enterprise Clinical Strategy and Quality at Humana
Mona Siddiqui, MD, MPH, MSE is Senior Vice President for Enterprise Clinical Strategy and Quality at Humana where she leads the development and management of Humana’s integrated clinical strategy and provides direction for clinical quality in an effort to drive continued improvement in the care and safety of patients.
Dr. Siddiqui most recently served at the U.S. Department of Health and Human Services as the Department’s inaugural Chief Data Officer. In that role, she led the effort to connect the nation’s health care data through the build-out of an enterprise wide data-sharing platform and governance structure at HHS and advanced the Department’s Artificial Intelligence strategy. Previously, Dr. Siddiqui served at the Centers for Medicare and Medicaid Innovation working towards implementing rapid cycle testing for payment models and model development for tech enabled solutions. She has also served with the White House Social and Behavioral Sciences Team (“nudge” unit) during the Obama administration working with ONC, CMS, FDA, VA and DHA on implementing and testing small nudges in large scale government programs to improve operational efficiency and effectiveness. Prior to her work in the federal government, Dr. Siddiqui was at the Johns Hopkins University Health System where she was focused on driving value based care initiatives.
Dr. Siddiqui holds a medical degree from the Johns Hopkins University School of Medicine, a master’s degree in Quantitative Methods from the Harvard School of Public Health, and a degree in Management and Engineering from the Stanford University School of Engineering.
Info
What is Gutsy Gathering?
Gutsy Gathering is 11 Health’s Virtual Support Group for patients who are seeking support for digestive disorders.
Specifically, Gutsy Gathering supports patients who have IBD or Colorectal Cancer, currently have an ostomy, or may one day face surgery for their disease. We are patients, talking to patients.
What Happens?
During a Gutsy Gathering meeting, patients will have the opportunity to share their experiences with a group of peers, all monitored by a licensed 11 Health nurse.
Also, each Gutsy Gathering meeting will feature an expert in the field. All group leaders have resources, training, strategies and real-life experiences.
When do groups meet, and what are the technical requirements?
Gutsy Gathering meets once per month. In order to join the meeting, you must pre-register here, and have access to a computer or mobile device with internet access to launch a ZOOM meeting. (Please download ZOOM prior to the meeting, a link will be provided after you register.)
Our Rules
1
What is said in the meeting, stays in the meeting
This is the essential principle of confidentiality and must be respected by all participants.
2
Differences of opinion are OK
We are all entitled to our own point of view.
Use “I” language
Share from your personal experience, say “this is what helped me” or “when I was faced with this problem, I …” – don’t give advice unless asked to.
3
It’s OK not to share
People do not need to actively participate; much can be gained by just listening.
4
Its everyone’s responsibility to make the group a safe place to share
Treat each other with respect and kindness. Show compassion and respect confidentiality.
5
One person speaks at a time
Each person should be allowed to speak free from interruptions and side conversations
6
Questions shared via chat to the Nurse Leader
Comments and questions must be shared via chat and directed to the nurse leader. She is the appropriate person, so share with the speaker to be responded.
7
Share the air time
Everyone who wishes to share has an opportunity to do so. No one person should monopolize the group time.
8
“Headline” your comments
Say the most important part of your comment first. Try to keep your contribution brief and to the point.
9
The group leader may interrupt you
This is to keep the meeting on track.