Gutsy Gathering
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“As a patient myself, I know just how important support is. During these times, we might be missing out on those gatherings that give us so much support and encouragement. 11 Health is offering virtual support groups for patients to help the wellbeing of those with an ostomy/IBD/colorectal cancer communities. We will be offering groups with dynamic speakers that cover trending topics as well as groups for patients just to get together and talk about what they’re currently facing as a patient.”
Jessica Jay, Ostomy Patient and 11 Health Account Manager
Info
What is Gutsy Gathering?
Gutsy Gathering is 11 Health’s Virtual Support Group for patients who are seeking support for digestive disorders.
Specifically, Gutsy Gathering supports patients who have IBD or Colorectal Cancer, currently have an ostomy, or may one day face surgery for their disease. We are patients, talking to patients.
What Happens?
During a Gutsy Gathering meeting, patients will have the opportunity to share their experiences with a group of peers, all monitored by a licensed 11 Health nurse.
Also, each Gutsy Gathering meeting will feature an expert in the field. All group leaders have resources, training, strategies and real-life experiences.
When do groups meet, and what are the technical requirements?
Gutsy Gathering meets once per month. The next meeting will take place on Wednesday, August 26th, at 4:00 PST. In order to join the meeting, you must pre-register here, and have access to a computer or mobile device with internet access to launch a ZOOM meeting. (Please download ZOOM prior to the meeting, a link will be provided after you register.)
Upcoming Meeting
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Wednesday July, 29th | Time: 7:00 pm EST / 4:00 pm PST | Guest Speaker: Jeanine Gleba, UOAA’s Advocacy Manager.
Hosts: Sierra Cabezas & Charlotte Rensberger| Nurse leader: Lindsey Auerbach
Meet the speakers
Jeanine Gleba
UOAA’s Advocacy Manager
As UOAA’s Advocacy Manager, Jeanine Gleba raises awareness and advocates for those who have had or who will have ostomy or continent diversion surgery. Jeanine has her Masters degree in Education and over 16 years of experience of grassroots organizing including partnering groups to achieve a common goal and raising awareness for a cause. Before joining UOAA, Jeanine was the driving force behind the successful passage of a New Jersey law named for her daughter Grace, which benefits thousands of NJ children who have hearing loss. She is an award-winning advocate most recently receiving the 2020 Outstanding Alumni Award from Penn State Schuylkill Campus. She is also the author of the book Making Her Point Loud and Clear – The Story of a Warrior Mom on a Mission and the Ebook: Warrior Mom’s Guide to Passing a Law. Jeanine believes in giving back to her community and has served in numerous roles including as an elected official: Deputy Mayor/Councilwoman for six years. She currently serves on the Wound Ostomy and Continence Nurses Certification Board as a public member and the NJ Audiology and Speech-Language Pathology Advisory Committee as a Public Member. Jeanine is passionate about inspiring others to self-advocate and make a positive change in their own lives, as well as in the lives of others.
Rules
Support Group Rules
1. What is said in the meeting, stays in the meeting
This is the essential principle of confidentiality and must be respected by all participants.
2. Differences of opinion are OK
We are all entitled to our own point of view.
3. Use “I” language
Share from your personal experience, say “this is what helped me” or “when I was faced with this problem, I …” – don’t give advice unless asked to.
4. It’s OK not to share
People do not need to actively participate; much can be gained by just listening.
5. Its everyone’s responsibility to make the group a safe place to share
Treat each other with respect and kindness. Show compassion and respect confidentiality.
6. One person speaks at a time
Each person should be allowed to speak free from interruptions and side conversations.
7. Share the air time
Everyone who wishes to share has an opportunity to do so. No one person should monopolize the group time.
8. “Headline” your comments
Say the most important part of your comment first. Try to keep your contribution brief and to the point.
9. The group leader may interrupt you
This is to keep the meeting on track.
